Propose a Medical Portal

Started by Patricia Ann Scoggin on Saturday, March 31, 2018
Showing 1-30 of 35 posts

It was brought to my attention that some of the CoD portal proposed projects (i.e. Autoimmune Diseases) didn't cause death or weren't the primary CoD so wouldn't really fit there even though there maybe was an interest in one of the diseases. It was suggested that maybe there was a need for a "Medical portal" that would help organize all medically related projects (other than cause of death), including conditions that don't cause death but are of interest to Geni members. Do you think there will there be an interest in this OR not???

If there is an interest in this, I will be looking for a curator who might be interested & willing to be a major resource person for this proposed project and anyone else (esp. those with medical backgrounds) who might be interested in helping in creating and collaborating with this proposed project.

We will need a title that explains this project & an intro that would explain what projects would fit in it.
At present I think it should include:
** “Survivor of...” projects (I have created a few of these)
** “Living with...” projects (I have created a few of these)
** “Contributed to but not the primary cause of death” (don't think there are any of these at present.)
** “Died of another cause, but had this disease” (don't think there are any of these at present.)
** “Underlying Medical conditions” (don't think there are any of these at present.)

Any other suggestions???

What about adding doctor & nurse projects with links to them??? (I don’t know what projects these might include at present, so would need help finding them if they are included in the portal.)

Will need help in getting this proposed project organized & set up.

Feedback & volunteers appreciated.
Thanks, Pat

Patricia Ann Scoggin Good ideas as with autoImmunes you get kidney disease or lung disease and those may be the cause of death even though the autoimmune disease caused the lung or kidney issues, so basically the autoimmune is listed as "contributing factors" on the DCs. So basically because they get listed as "contributed to death" I think that would be a good place for the autoimmunes to live.

I just noticed I used "so basically" way too much. :o)

Debbie Jean Stango (Kunkel), I hope you will be following this discussion & contributing suggestions. I have a feeling there are many headings & projects that can go in this project... At this point it is a little overwhelming when I consider the magnitude of it !!!!!!!

I have started a doc. with info that can go into this project and am open to any & all suggestions.

At this point I have put the Autoimmune disease umbrella on hold. There are over 100 diseases that could be associated with it, but they would better fit under other medical headings (i.e. Multiple Sclerosis is under the Neurological... heading in the CoD portal)

Many of the projects I created for the CoD portal in the intro for who to add I included "...or contributed to the death" and am now not sure how to deal with those. To eliminate that comment, I don't know how it would affect those that have been added to those who have already been added to the projects. In the future I will leave that comment out of any project I create for that portal.

Patricia Ann Scoggin, I'd be happy to help and will follow. I can gather info or data if you'd like, just let me know. Auto Immunes have disabled me so I now have geni and genealogy to fill my time. I might mention that there are also things like Lynch syndrome, BRCA, alpha-1-antitrypsin deficiency, and many more inherited things that we could also consider as adding.

Pat I wouldn’t worry about editing out “or contributed to cause of death” out of those projects.

I think it more important to think about a Medical Portal in a broad picture. So autoimmune disorders would go under diseases? Is that the right term (doesn’t sound right).

So far we have

History of Medicine
Medical Occupations
- Training for medical occupations
Diseases and Disorders (??)
Notables in Medicine
Medical families

(One of my early arrivers to America was the cranky chirurgeon, and the practice continued for at least 4 generations, a pretty good run)

There is also no reason not to work on individual project pages while we develop the portal idea and structure. Projects are easily related to each other.

Erica Howton I think diseases would be the right area to put autoimmunes as they are "Autoimmune Diseases" Some like sjogren's are syndromes but I think it would be easier and keep it less complicated if they were listed under diseases. Only my two cents worth.

Diseases makes a good broad simple category.

Would Mental Illnesses fit under disease ?

I think it could, it would be a broad category and include many mental illnesses — Such as depression, anxiety disorders, schizophrenia, eating disorders and addictive behaviors.

Would it be OK to call it just Medical Portal? I think that's clear enough?

I can make the change in the name... I am going to add some pix but would like some input on which is best since this is such a broad project & covers so many areas. For the major "headings" is what I have enough (no other explanation)???

Erica Howton
Would you please look at the options--feel free to eliminate any that are definitely Not a candidate.

New Project has been created: https://www.geni.com/projects/Medical-Portal/47725

I hope that those of you who have created medically related projects will add them to the Portal. If you don't see a heading that fits, please feel free to add it & the project or let me know here. I have started with some headings & projects, but know there are many more headings that will need to be added as the portal expands.

Need some help with additions to project tags & related projects.

https://www.geni.com/projects/Farrington-s-Drug-Store-Sleepy-Hollow...

Pharmacists, druggists, apothecaries

pharmacies, drugstores

Hospitals

Medical research

Pat I don’t think the heading needs to be elaborate at all. A simple

this is an entree to medically related projects on genealogy Geni, please add yours.

Is enough, isn’t it?

Playing around with the images ...

Erica Howton
I have added the proposed project you mentioned above to the project, but am not sure about my formatting there. Thanks for helping with the pix. I just couldn't make up my mind... that one seems to cover all aspects.

I have also sent a message to the manager of the drug store project to add the Medical portal to the Drug Store project's Related Project. Will I need to do that to all of the other projects that I have added to the portal project? Will each project need to be added to the portal's Related Project tab???

Projects should be related. Up to you to index them. I (any curator) can do the relating in the initial setup, after that I think it should be that project manager.

Too soon to worry about formatting. It’s a holiday weekend and we really need more feedback on the proposal; entirely new categories might be suggested.

Formatting looks fine so far.

The project “so your on a disease” should be added under notables

There’s a Swedish apothecary project which is very well developed

There should be a midwife project out there

Erica Howton Thanks for the project you have listed. I have added all of them to the Medical Portal. I hope everyone who sees "their" project here will add the Medical Portal as a "Related project".

Erica Howton,
Would you please look at the Autoimmune Diseases Umbrella project introduction? https://www.geni.com/projects/Autoimmune-Diseases/47719

I modified it so it can be used in both the CoD portal & the Medical Portal. Does it explain things clearly enough? Too much??? Does it need further modification???

Showing 1-30 of 35 posts

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